Jodi Speaks Her Mind

 

Initial Stimulation - ON 2/24/2006

Filed under: Adelina, CI Journey — jodi @ 4:43 am

Adelina received her external sound/speech processor yesterday, and it was activated at a very low volume level. There isn’t much to tell yet, as the initial stimulation session was pretty uneventful. Adelina did cry briefly at one point but we are pretty sure it was because of disapointment. Her tears were almost silent, whereas if she were expressing displeasure or dislike, she makes grimaces and there is no doubt that she is unhappy. She was just so excited and hopeful to have her “new and better hearing”, but the reality is that in the beginning the neurological stimulation of sounds is nothing like natural hearing. It will take her some time to adjust to it and learn how to listen with this new form of hearing. We go for another mapping session next Thursday where they will likely just up the volume a bit or maybe they will do more. I’m still trying to understand what “mapping” is all about. In any case, her cochlear implant is now “turned on” and it will be a matter of time before we know the results. In the meantime, she will continue to listen and speak as before using her hearing aid in cooperation with her CI. The expectation is that someday she will begin to rely more heavily on the CI than on the hearing aid, especially since it will allow her to hear sounds currently outside of her range of natural, amplified hearing.

More as it develops…

 
 

Five years old!

Filed under: Family, Adelina — jodi @ 4:14 am

Adelina celebrated her 5th birthday this past weekend. We traveled to Virginia where she was able to meet both sets of grandparents, four sets of aunts/uncles, and five cousins - two of which are within 4 months of her own age. Her party was quite the shindig and she loved the attention, the cupcakes, and the huge mound of presents, too! She was so cute when she opened them. First, she would look around the room and whoever the present was from was supposed to wave so she knew who it was from. We were really impressed by this demonstration of graciousness. She is really an amazingly sweet child!

Pictures of our trip and her birthday party will be posted soon.

 
 

Almost Five 2/15/2006

Filed under: Family, Adelina — jodi @ 2:08 am

Busy, busy, busy… birthdays, Valentine’s Day, and all sorts of other exciting things are occupying our time these days. Nonetheless, I decided I simply had to do at least a short update before last week’s news becomes ancient history. It seems to happen this way with children. They just change and grow so fast that any particular stage is truly fleeting.

Adelina celebrates her fifth birthday this Sunday. Having recently attended another little girl’s birthday party and then going through the process of planning her party and giving out invitations, we are pretty sure she understands at least generally speaking that her birthday is going to be a pretty special event. She has decided what she will wear and is generally a bundle of excitement. Much like Christmas, though, her excitement is somewhat contained because she isn’t yet fully aware of what it means to have a birthday (God help us next year!). We have been practicing the idea that she will change from being four to being five, but this is all a pretty new concept to her. Still, she seems to understand at least theoretically.

Adelina’s incision has healed beautifully since her surgery and she has recently resumed wearing sunglasses (a must in always-sunny Arizona) - and a good indicator that she’ll be ready to wear a speech processor on that ear when she gets it next week. There has been no sign of any more swelling for awhile now, so she shouldn’t have a problem keeping the headpiece on her head either. Oh, for those who are interested, the implant Adelina got is called the Advanced Bionics Hi-Res 90K implant and she will be wearing the Auria BTE (behind-the-ear) processor and headpiece. If you want to learn more the AB website has excellent overviews about their implants and processors: http://www.bionicear.com/.

As far as her speech and language development, Adelina has been truly amazing us. She continues to improve in her signing abilities, but is also wowing us with her rapid acquisition of spoken English. The conclusion we are drawing from this is that her audiograms from Ukraine were likely accurate, and her hearing in the right ear deteriorated more recently - probably in the last year. The good news in this is that she will likely learn to use her cochlear implant more rapidly than a child who has not heard sounds or speech prior to implantation and activation. And given that she is currently attending to speech sounds with just one hearing aid, our hopes are indeed high that she can someday participate fully in the hearing and speaking world. We do not place this upon her as a demand or an expectation, but she has the right tools and personality and has demonstrated of her own initiative that she desires - and is capable - of communicating through speech. She just needs the right people to guide and assist her with acquiring the language she needs to express her thoughts, feelings, and understandings of the world around her. What an exciting time this is for Adelina and for us!!